I thought I'd follow up.
After 6 months of salting everything including water (with Nuun tablets) I was still having symptoms. I'm now on midodrene and florinef (I tried each of them separately but they didn't do enough alone) and while those two together did resolve most of the dizziness, I'm still having problems related to the elevated HR/low BP (chest pains, lightheaded at times, shortness of breath, weakness in muscles and SLOW running where my HR is 165 when I'm at an 11:30 pace!) My HR is still over 95 when just standing quietly (sitting HR is 55-60, resting HR is <50). I've just been slogging through my workouts because I know that inactivity will make it worse.
Just went to the cardiologist again on Friday and he upped the midodrene to 5hcl 3x/day, which is currently giving me weird "skin crawling" sensations but hopefully that will go away soon. I did one bike ride on Friday evening and my HR was so low I thought my HR strap was malfunctioning (which it may be!) Didn't ride yesterday due to T-storms, but will test it out today. I did ask my doctor if I just needed to accept that this was my "new normal" and he said no, there are still things to try and that he's not giving up. That was the best thing to hear because my PCP (who I dropped because of this) had basically given up and told me I was "getting older and things slow down." Bite me! So I'm glad to hear the cardiologist say that we are not at the end of our options and he can get me back to feeling normal. And I found a new PCP (who is a locally respected D.O. with a great manner) that is also supporting this.
After 6 months of salting everything including water (with Nuun tablets) I was still having symptoms. I'm now on midodrene and florinef (I tried each of them separately but they didn't do enough alone) and while those two together did resolve most of the dizziness, I'm still having problems related to the elevated HR/low BP (chest pains, lightheaded at times, shortness of breath, weakness in muscles and SLOW running where my HR is 165 when I'm at an 11:30 pace!) My HR is still over 95 when just standing quietly (sitting HR is 55-60, resting HR is <50). I've just been slogging through my workouts because I know that inactivity will make it worse.
Just went to the cardiologist again on Friday and he upped the midodrene to 5hcl 3x/day, which is currently giving me weird "skin crawling" sensations but hopefully that will go away soon. I did one bike ride on Friday evening and my HR was so low I thought my HR strap was malfunctioning (which it may be!) Didn't ride yesterday due to T-storms, but will test it out today. I did ask my doctor if I just needed to accept that this was my "new normal" and he said no, there are still things to try and that he's not giving up. That was the best thing to hear because my PCP (who I dropped because of this) had basically given up and told me I was "getting older and things slow down." Bite me! So I'm glad to hear the cardiologist say that we are not at the end of our options and he can get me back to feeling normal. And I found a new PCP (who is a locally respected D.O. with a great manner) that is also supporting this.