Ok, long slow path since June.
Detailed iron panel - no sketchy results
Detailed thyroid panel - T4 a below normal low level
+ more to follow
+ MRI to investigate potential pituitary issue, no indication of trouble
Adrenal response test with no indication of troubles (she did not like the racing HR with that stuff in her system)
Negative for Lyme disease.
Negative for celiac.
She has picked up a dairy sensitivity in the last six months. She mostly avoids dairy now, occassionally taking Dairy Assist to allow pizza or ice cream. Roughly 2x per week.
Neurologist has no ideas and no recommendation for path forward.
Cleveland Clinic pediatric endocrinologist suggested that integrative medicine may be the next step.
She started on low dose of synthoid (levothyroxine 75 mg) seven weeks ago.
+ her Mom & I feel depression is reduced
+ her sleep pattern is better, she appears rested now in the morning
+ workout fatigue is not improved, last summer she wore us out biking and running in addition to the swim club
+ she describes it as "muscles feel tired all the time"
+ re-ran the thyroid panel last week, all markers within normal limits now, including T4.
+ I don't have the detailed results yet, conversationally, T4 is now above the low limit.
+ we asked for an increase in synthroid, the endocrinologist said no, it is too early
She keeps a food diary from time to time, but fights us on it tooth and nail. I see her with the herd of teenager swimmers a couple times a week. She is not the thinnest and not the heaviest.
I can't believe what a long road this has been with no real sign of an answer. I can't imagine how this must be for someone with a debilitating issue.
Any ideas out there?
Does anyone have any experience with this book? https://www.amazon.com/...lab+tests+are+normal