How we cured our dog's epilepsy (long) but hope it may help

I remember a few posts popping up on the LR regarding epilepsy in dogs. I’m posting this now in the hope that it may help anybody who has a dog suffering from epilepsy. Please free to re-post this on any forums that may deal with this subject. I’m not claiming that this is the cause of all epilepsy in dogs but it may give dog owners a possible route to explore since it worked for us.

It’s been three years since our dog had his last grand mal seizure. Our dog Murdoch is a golden retriever/black lab cross who at three years old suddenly starting having grand mal epileptic attacks – absolutely horrible to watch, he’d flail uncontrollable and pee himself. In an initial period of five weeks he had eight seizures.

We deal with two women partner veterinarians who I’ll call vet A and vet B. They’re as different as a liberal democrat vs a conservative republican in their openness to alternative care. The problem in their clinic is that whenever we take our dog or cats there we never know which one we’ll get.

Initially we took Murdoch to vet A and she told me to put him on phenobarbital. She explained that it would never be a cure but might diminish the frequency of the attacks. A brief internet search revealed that phenobarbital is pure poison. It causes depression and destroys a dog’s liver not to mention many other possible side effects. We made it very clear to vet A that there was no way in hell that we would put our dog on this crap.

I then began exploring several net forums dealing with alternative health therapies for dogs. The recurring theme that kept popping up was that of food allergies being caused the crap dog foods people are feeding them. Further investigation on the web came to a site that analyzed the garbage that dogs are being fed in commercial foods, and not just the made in China Walmart stuff, but also some of the supposedly higher end foods.

I talked to vet A and her response was “there is nothing about this in any of the scientific journals”. End of conversation. Her attitude was that if somebody hasn’t published it in a peer reviewed journal then it can’t possibly exist and then again told me to put Murdoch on phenobarbital.

Fortunately her partner vet B is much more open to thinking outside the box and told us to go for it.

We played around a bit with a few food choices and Murdoch’s seizures diminished to about one every three months. We also met a guy that claimed he had completely cured his dog’s epilepsy by putting his dog on a strictly raw meat diet. That would have been our next choice, but some interesting events happened next.

At the same time this was going on Murdoch also had what seemed like a chronic ear infection. The vets had him on a regime of pills/ear drops assuming that it was either a chronic bacteria or yeast infection. Eventually we made the suggestion to the vets to send out a swab for a culture. And guess what – it came back negative indicating to us that this was some sort of auto immune response which we suspected was likely again to food allergies and related to his epilepsy. Vet B agreed.

Vet A then shrugged and said she’d “look it up in the science journals” while vet B told us we could possibly be on to something and referred us to the neurology clinic at the University of Guelph vet school.

I took Murdoch to U of G for tests and to meet the head neuro honcho at the vet school and was expecting the worse from him about my theories regarding Murdoch’s food allergies and epilepsy but couldn’t believe what happened. The big guy of the department told me he has had a couple of dogs in with the same or similar condition. In one case a dog with epilepsy also had a chronic rash on his face and when he touched it in examination the dog went into an epileptic fit. He felt that what was happening was that Murdoch would scratch his ear and set off an epileptic fit. He didn’t know the mechanism of this but was planning on writing an article about it and speculated that it likely had something to do with food allergies. He then prescribed a specialized anti allergic dog food.

There were two young understudies at the U of G that gave us a big pat on the back for pursuing this avenue as did vet B. Vet A’s response was also predictable – “I want to wait until the clinical studies in a per reviewed journal come out”. Vet B now has another approach she would be willing to explore in future dog epilepsy cases. No doubt vet A will continue only to prescribe phenobarbital. We now will only take Murdoch to vet B.

Conclusion

We were prescribed a kangaroo/oat based dog food from a company called IAMS that in Ontario is only available by prescription. The rational for this is because this this food is kangaroo/oat based and Murdoch would never had these foods previously so if he really did have allergic related epilepsy then this dog food should eliminate them. It’s been three years and not only has Murdoch’s seizures completely disappeared but his ear issue was also gone very shortly after switching to this food. The obvious thing to do to figure out what was causing his seizures would be to introduce different foods one at a time until he has a seizure, but to be honest, we’re just not that scientifically curious so we’ll just keep Murdoch on this food exclusively.

It’s been three years and Murdoch has not had a single epileptic seizure. Vet B is a believer and Vet A is still a skeptic waiting for someone to write a study in a journal.
The bottom line is that if we had listened to Vet A and her rant about “lack of scientific studies in peer reviewed journals” then Murdoch would be still having epileptic fits as well as suffering from all the side effects of phenobarbital.

We thought outside of the box. It was an educated guess and I’ll admit we got lucky. I won’t speculate on the possible food allergy connection with epilepsy in humans, but when you think about the bigger picture there are no doubt a lot of people doctors just like vet A.

I hope there are a few veterinarians who will respond to this. Much more importantly I hope this post gives anybody who has a dog suffering from epilepsy a possible avenue to explore.

That is awesome. Interesting parallel to the complementary/alternative medicine thread going…
I have a good friend who is dealing with an epileptic pooch. I forwarded this thread to him. I’ll post back if anything comes of it.
Really glad to hear Murdoch is seizure free!
Cheers,
John

"Interesting parallel to the complementary/alternative medicine thread going… "

That’s why I finally posted it tonight after reading that thread. I just can’t wait for FTDA and veganerd to show up. If they’re still single I’ve got a girl for them - Vet A. :slight_smile:

Sounds like she’ll be a good match.
I haven’t posted to that thread, or any of the countless others that bash chiropractors- but my low back pain/SI troubles, as well as my wife’s neck problems, have both only been relieved through chiropractic treatment…so I appreciate what you do!

We have one dog with a chronic ear infection and another who just started having seizures a few months ago. Changing their diet seems like an easy fix. We will give this a try.
Thanks for posting.

Try the IAMS kangaroo/oat based formula. Where we live its only available through a vet’s office by prescription and not available commercially. Its the one our dog has been on for three years with not a single seizure and the ear infection went away. As I mentioned in the main post, the logic behind this is that your dog would not have likely have kangaroo/oat in his current diet so this will eliminate any foods that could be causing an allergic reaction. We noticed the ear infection disappeared after two weeks or so on this diet. Don’t feed him any other foods/snacks, only this food. Good luck with it.

Sometimes the scientific basis lags an effective treatment – http://www.the-scientist.com/?articles.view/articleNo/29448/title/New-gut-bacteria-regulate-immunity/
.

first off, im really glad your dog isnt having seizures. but you wanted a rebuttal…

**Initially we took Murdoch to vet A and she told me to put him on phenobarbital. She explained that it would never be a cure but might diminish the frequency of the attacks. A brief internet search revealed that phenobarbital is pure poison. It causes depression and destroys a dog’s liver not to mention many other possible side effects. We made it very clear to vet A that there was no way in hell that we would put our dog on this crap. **

this is the best treatment for idiopathic epilepsy in dogs. it is not “pure poison” as you clam. its main side effect is drowsiness but usually goes away after a couple weeks. it can be harmful to the liver in SOME dogs but regular blood draws by your vet ensures that they are removed from the medication if the liver shows any indication of being affected. when youre having seizures its far FAR more important to get them under control even if it means temporarily damaging the liver. seizures are more life threatening than temporary liver damage. phenobarbital induced liver damage is usually reversible. its not the only medication either. potassium bromide is also used and is not hard on the liver.

**At the same time this was going on Murdoch also had what seemed like a chronic ear infection. The vets had him on a regime of pills/ear drops assuming that it was either a chronic bacteria or yeast infection. Eventually we made the suggestion to the vets to send out a swab for a culture. And guess what – it came back negative indicating to us that this was some sort of auto immune response which we suspected was likely again to food allergies and related to his epilepsy. Vet B agreed. **

nope nope nope all day long. ear infections in dogs are caused by all sorts of things. bacteria and yeast are the most common. just because it isnt that does not mean it should indicate an auto immune response. it could be foreign bodies, excessive wax, hypothyroidism, too much hair in the canal,or even allergies. just because you rule out one thing doesnt mean its another. you dog could also get several ear infections for different reasons. see why that line of thinking is bad?

Her attitude was that if somebody hasn’t published it in a peer reviewed journal then it can’t possibly exist.

how on earth do you make that conclusion? im betting that youre making the same mistake slowguy made earlier in the other thread when he accused me of the same thing.

**. It’s been three years and not only has Murdoch’s seizures completely disappeared but his ear issue was also gone very shortly after switching to this food. The obvious thing to do to figure out what was causing his seizures would be to introduce different foods one at a time until he has a seizure, but to be honest, we’re just not that scientifically curious so we’ll just keep Murdoch on this food exclusively. **

be careful not to confuse correlation with causation here. there are in some cases, allergies correlated with epilepsy. it does not mean epilepsy is caused by allergies. its also not surprising since allergies are more common than epilepsy that there would be a correlation there. the bottom line is that while its fantastic that your dog is not longer having epilepsy, you have no justification in saying that it was caused and cured by your food choices for it. its not at all uncommon for epilepsy to be “outgrown” and for seizures to diminish and stop.

The bottom line is that if we had listened to Vet A and her rant about “lack of scientific studies in peer reviewed journals” then Murdoch would be still having epileptic fits as well as suffering from all the side effects of phenobarbital.

you dont know either of these things. theres no justification to claim it.

heres what i got from your story:

your dog had seizures
you never confirmed what was causing them
you never used medication
you switched lots of foods
they eventually stopped.

correlation==causation

heres what i got from your story:

your dog had seizures
you never confirmed what was causing them
you never used medication
you switched lots of foods
they eventually stopped.

correlation==causation

This.

It is really simple really if you believe your own story: Put your dog back on the original food. If that is what caused the seizures in the first place, they will quickly start again. Science is all about using a theory to generate testable hypotheses. If you think what you have is scientific evidence, you have an obvious and testable hypothesis, so go test it. If you doubt that this would be a valid test then explain why your theory doesn’t make this a proper test.

Either way, good news that your dog is at least currently seizure free. Nobody, dogs included, should have to suffer through that.

This is incredible. You really deserve a pat on the back.

heres what i got from your story:

your dog had seizures
you never confirmed what was causing them
you never used medication
you switched lots of foods
they eventually stopped.

correlation==causation

This.

It is really simple really if you believe your own story: Put your dog back on the original food. If that is what caused the seizures in the first place, they will quickly start again. Science is all about using a theory to generate testable hypotheses. If you think what you have is scientific evidence, you have an obvious and testable hypothesis, so go test it. If you doubt that this would be a valid test then explain why your theory doesn’t make this a proper test.

Either way, good news that your dog is at least currently seizure free. Nobody, dogs included, should have to suffer through that.

Cerveloguy never claimed to have a testable hypothesis or scientific evidence. He claimed to have something that worked.

That’s the whole point. You and veganerd can put your dogs back on foods that may or may not give them seizures if you want to carry out an experiment. In the meantime, people who live in the real world are going to go with whatever works.

you have no justification in saying that it was caused and cured by your food choices for it.

Just stop. You’re just arguing because you don’t want to let go of your point. The dog was on one kind of food and had ear infections and epilepsy. They switched food and the infection cleared up and epilepsy stopped. It may not be conclusive enough to build a peer reviewed medical study, but to claim he has “no justification” to claim that the food change helped is just ridiculous.

you dont know either of these things. theres no justification to claim it.

Well, except for the prognosis offered by their vet who said the phenobarbital would only reduce the frequency of the seizures.

What exactly whould you have people do in these situations, since you have deemed them to be wasting their time and money pursuing alternatives to strictly studied medical treatments? In your mind, is it a better value to keep pouring money into medical treatments that don’t solve the problem? What makes you more qualified to judge than the vet who suggested this change in food?

Cerveloguy never claimed to have a testable hypothesis or scientific evidence. He claimed to have something that worked.

Problem is he has no idea whether what he did actually worked or whether what he did happened in conjunction with something else that “Worked”…this is why we have studies. You can put leeches on your skin to suck your blood all day long when you’re sick. In almost every case you will get better eventually, that doesn’t mean that the leeches caused you to get better.

What Cerveloguy has is something that might work and the only way to find out if it DOES work is with a study.

I’m not saying it doesn’t work and in fact if I had to guess I would even say that this is probably most certainly part of the issue, but like Venegard stated there are all sorts of KNOWN things that cause similar problems.

On a similar track my wife had “Exercise induced asthma” that started when she was in college and continued to get worse. She eventually was on Advair and had to use a rescue inhaler sometimes a couple times a day. She cut out all dairy and with in a month the asthma started to go away. Eventually, with in sic months, she was off the Advair and inhaler all together. Every time she has any dairy, even a little, she has a reaction similar to her asthma. To some degree she has done a study, have dairy, have reaction. Even after several years, while I would suggest this as “Something to try” I would not say “This works” and or “There is a definitive correlation” because N=1 under completely uncontrolled circumstances is simply not enough data to make such a claim.

In the meantime, people who live in the real world are going to go with whatever works.

Valid point, but “Whatever works” is not “Doctors should follow this”. A vet should not be taking the “Whatever works” advice from their clients and prescribing what to do. That is the difference here. Until we have more data this is not “Something we know to work” it’s “Hey, try this, it might work”. A doctor on the other hand can’t really do that to the extent that you and I can.

~Matt ** **

Problem is he has no idea whether what he did actually worked or whether what he did happened in conjunction with something else that “Worked”…

That’s bullshit. He doesn’t have concrete evidence that proves that diet change was what helped. That’s not the same as saying he has no idea. He pursued a diet change based on the advice of a veterinary professional, and having changed nothing else, he changed the diet and the symptoms abated. To say he has “no idea” if the diet change worked is to ignore reality.

What Cerveloguy has is something that might work and the only way to find out if it DOES work is with a study.

You’re a funny guy. I don’t know how we all live in this world without all the studies we must need to tell us if the things we do accomplish the effect we want.

To some degree she has done a study, have dairy, have reaction.

To no degree has she done a study. She’s had trial and error, pretty much like cerveloguy. Cerveloguy was just smart or kind enough not to deliberately induce symptoms in his dog for the sake of experiment.

Valid point, but “Whatever works” is not “Doctors should follow this”.

Good thing that noone has suggested that. What people have suggested is that people keep an open mind to things doctors might not follow, because doctors don’t have all the answers, and alternatives to medicine might work.

A doctor on the other hand can’t really do that to the extent that you and I can.

A doctor can do that. The vet B in this case did just that. The doctor just has to explain to the patient that what he’s suggesting is an unproven alternative, and explain the potential risks, if any.

He doesn’t have concrete evidence that proves that diet change was what helped. That’s not the same as saying he has no idea.

Fine, whatever. He simply can’t say “This is what cured my dog”. HE can say “It’s possible this cured my dog…but I’m guessing”.

You’re a funny guy. I don’t know how we all live in this world without all the studies we must need to tell us if the things we do accomplish the effect we want.

Because most of what we do is not as complex as our health and most of what we do is repeatable by ourselves and by others. If I hammer a nail into a board with a hammer I can see the effect I want and watch the mechanisms that take place. I can do that several hundred times in a row and describe what I did to hundreds of people who can do the exact same thing and nearly without fail will ALL get the same effect.

I would bet that Cerveloguy will without question get a much lower percentage of repeatability. In fact we have no idea what level of repeatability he will get. We have no idea whether this worked for his dog only, 1 out of 5 dogs or 1 out of 1000.

To no degree has she done a study. She’s had trial and error, pretty much like cerveloguy.

Actually I believe trial and error is actually a type of study and no Cervelogy has not done this. He tried it once and that is it. We have no idea whether putting the dog back on the food he was on before would have any effect. We don’t know that maybe the dog had some other ailment that the change in food allowed to heal and that going back to the same food would have no effect at all.

Good thing that noone has suggested that.

Vet B is a believer and Vet A is still a skeptic waiting for someone to write a study in a journal.

I inferred from the OP’s original post that he believes that Vet B will now tell his clients to “Change diet” and that the skepticism of Vet "A’ waiting for scientific evidence is a negative thing. I could be wrong about that assumption but if I’m not then the OP said this.

A doctor can do that. The vet B in this case did just that. The doctor just has to explain to the patient that what he’s suggesting is an unproven alternative, and explain the potential risks, if any.

And I’m suggesting that doctors really should not be prescribing unproven alternatives or even telling their patients to try them with caution. Doctors moto is “First do no harm” and the possibility is very high that trying unproven things can indeed cause harm as the effects and outcomes are unknown. “Unproven alternative” is another word for “We don’t really know what the outcomes are.” which means bad things could happen. Even in the case of nothing happen you have just allowed the patient to suffer unduely while other known and scientificly proven options were ignored.

~Matt

Cerveloguy never claimed to have a testable hypothesis or scientific evidence. He claimed to have something that worked.

if something worked then its testable.

In the meantime, people who live in the real world are going to go with whatever works.

you have no way of knowing that this worked and thats the point you seem to be missing. you know what does work? the only thing vet a kept insisting on and he refused, phenobarbital.

****Good thing that noone has suggested that.

Vet B is a believer and Vet A is still a skeptic waiting for someone to write a study in a journal.

I inferred from the OP’s original post that he believes that Vet B will now tell his clients to “Change diet” and that the skepticism of Vet "A’ waiting for scientific evidence is a negative thing. I could be wrong about that assumption but if I’m not then the OP said this.


The OP said that Vet B believes that the diet change worked. He didn’t say that doctors SHOULD do anything; your inference notwithstanding.

And I’m suggesting that doctors really should not be prescribing unproven alternatives or even telling their patients to try them with caution.

Good luck with that. It’s just not how the world works.

Doctors moto is “First do no harm” and the possibility is very high that trying unproven things can indeed cause harm as the effects and outcomes are unknown.

And yet, plenty of studied treatments have harmful side effects as well, and virtually no doctor will claim to “know” what the outcome will be with any treatment regimen.

Even in the case of nothing happen you have just allowed the patient to suffer unduely while other known and scientificly proven options were ignored.

Again with this strawman argument. Nobody is advocating for people to ignore medicine in favor of alternatives.

this is the best treatment for idiopathic epilepsy in dogs.

I’d have to say that in this case I found a much better way. You’re way too predictable.

if something worked then its testable.

And?

you have no way of knowing that this worked and thats the point you seem to be missing.

As I told Mjuric, that’s just plain and simple bullshit. If I hit my thumb with a hammer and the thumb turns blue, I don’t have to conduct a study to be able to know what cause the blueness. If cerveloguy changed nothing but his dog’s diet, and the dog’s symptoms went away rapidly, then it’s simply ridiculous to claim that he has no way of knowing if it worked or not. Again, not being able to prove something is not the same as having no idea or having no way of knowing.

you know what does work? the only thing vet a kept insisting on and he refused, phenobarbital.

Except that Vet A didn’t even claim that phenobarbitol would “work.” Vet A claimed that the drug would reduce the seizures. Cerveloguy got a superior outcome. If you would prefer to have your dog experience continued seizures instead of trying an alternative, that’s certainly your perogative. in the meantime, those of us who live in the real world will keep trying alternatives that might produce better results, especially when the risk is fairly obviously low.

Just stop. You’re just arguing because you don’t want to let go of your point.

im arguing because of a variety reasons actually. heres a few: first off cerveloguy invited me to. i also argue because its fun, because its good to have ideas challenged (including my own) and because im convinced that i am correct here.

What exactly whould you have people do in these situations,

follow the science based medicine.

In your mind, is it a better value to keep pouring money into medical treatments that don’t solve the problem?

no, which is why i want people to stay away from quackery.

What makes you more qualified to judge than the vet who suggested this change in food?

im not claiming to be more qualified. arguments stand and fall on their own merit.