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If you are an elite athlete though you will need to have the surgery sooner than later if it is EAIE.
You may know Travis Meyer and Stuart Ogrady had EAIE corrective surgery and both went back to professional cycling within 6 months.
Please keep i touch and let me know how things pan out.
Spent the whole day at Mayo for basically the ABI and then to meet with Dr. Bower. The ABI test was weird (they said they are learning, and I did not have a BP cuff on while doing it, and wasn't given any instructions/direction). Was told the test was normal but need to do a CT in the cycling position and need to have heart/lungs checked as I just cannot get enough air to do anything for some reason. Also getting headaches all the time (never been a headache kinda person).
However, when I asked them to send me the test results and also Dr. Bower's summary, they actually weren't normal. Apparently I'd misunderstood. It wasn't terrible like everyone else here (in fact, it was normal pre-exercise), but was abnormal post exercise and result was mild peripheral artery disease on both sides. Ankle BP actually does the opposite of arm BP (goes down when arm goes up, and when arm BP goes down, ankle BP goes up. Ankle BP 5 mins later was actually higher than pre-exercise, I don't know why. But again, lowest number wasn't terrible at .71 one minute after exercise).
I have VO2 max testing on Tues because there is concern it may come back at the level of a sedentary person. Also because I have a history of a prior lung infections, and had pneumonia once and bronchitis twice within the past three years.
Bottom line, mild bilateral peripheral artery disease with no risk factors (not diabetic, not obese, low BP, etc). I'm worried it's cardiac related or lungs. Should know more Tues. VO2 max isn't going to be good since I've basically been inactive for a few months, but apparently it should still tell me if it's heart/lungs.
If it's kinking causing the blood flow problem, then is it just a release of the artery? There won't necessarily be endofibrosis on or in the artery? or is it the kinking that causes the arterial endofibrosis and lesions ?
Thanks again :-)
I started noticing problems in 2007 shortly after I was diagnosed with Celiac disease (I thought that's what it was, and I'd only been riding a few years at that point). Ironically, I fell in love with TTs that year (after trying CX, crits, and road races) and went for a bike fit. I didn't know it would be a problem to be aero in all my rides (group, solo, training, races) so I just left it in TT position all the time. This is the best side shot I can find (lots of photos from the front or angled a bit front to side!). This is how I've been riding since 2007 (I do stock only):
(I miss that TT and sure hope I can do it again next year!!!)
I'm not sure If i'm a normal human :-) When we did the ABI it returned a 'normal' reading. This was after a solid ride on the stationary trainer and symptoms were alive and kicking. I had one cuff on the right arm and then two on each ankle. Doppler Ultrasound showed nothing on the external Iliac artery. After this test, I didn't have vascular problem, and that was certain. I just collapsed on the bed....thinking its all in my head, im just going to give up sport.
The Doc popped back in to the room and asked for the Common Iliac to be Ultrasound, which seem to be quite a distance from the external iliac scan location. After not many words said by all, I had no idea what was going on. I just felt embarrassed to have wasted their time with with months of searching. The ABI had turned up normal and I knew the ABI was the most definitive test to identify Vascular problems. I felt stupid.
A post- test chat with the Dr and he said the Doppler Ultrasound actually picked up a Peak Systolic Velocity (PSV) in Common iliac of 450+. Apparently a rather high reading (compared to normal) and an indication of arterial blocking. We found the problem but I wasn't convinced, and either was the Dr, as the ABI was 'normal'.
After 24 hours of everyone thinking (Sports Doc, Vascular Doc and Me).....It was confirmed as Endofibrosis of Common Iliac. Both the 'dot' picked up in the angiogram, The PSV of the artery and the symptoms were enough to confirm / convince.
Where to from here...surgery to fix. But lots of questions to ask before making a decision:-)
Have you decided when and where you will have surgery e.g In Melbourne ?