Lyme was suggested several times in this thread and was tested for several times. As an engineer, I failed to understand the high incidence of false negatives for some of the simple tests.
We did not realize was that there are multiple test for Lyme and they all have issues. Eventually we had the Western Blot run and she showed some reaction to three of the bands. My wife found a Lyme doctor here in western PA that would treat a juvenile. She started treatment (mix of antibiotics and crazy amount of nutritional products) in February. From my perspective she has been on a slow recovery since then. She does not always agree.
I guess the biggest reason for sharing this info at this point in the game is to hopefully help anyone else in a similar problem.
In parallel, after about a year of trying, her Cleveland Clinic endocrinologist got her in to see their functional medicine group. After some detailed testing for heavy metals he agreed that Lyme was the best fit and recommended she stay "outside the system" with the Lyme doctor.
I just read an article about Angela Naeth's battle with Lyme and it reminded me I had not updated this thread. https://triathlonmagazine.ca/...OOSb3ZOB9m3G67ycQgPk
Thank you for all the council.
Best Regards, Alan