I'm 56 and have them as well on both hands. Not bad enough yet for surgery yet but likely will go under the knife at some point.

Hopefully you don't mind a couple of questions as I'm curious how old you are and long did you have them?

it started in my pinky. i'm not sure when i noticed it getting crooked, but then about3 or 4 years ago i noticed a ball inside the pinky knuckle and it hurt. two years ago i got the first cortesone injection. 1 year ago i posted here that this probably would never becme a problem. about 6 months ago i had a zyloflex treatment that didn't work. my hands get inflamed on the road bike and i can't ride the mt bike any more

hand feels pretty good today

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''Sweeney - you can both crush your AG *and* cruise in dead last!! 😂 '' Murphy's Law

Thanks, and I hope it heals quickly for you.

Thanks for sharing.

I was diagnosed a year ago. So far only in my right hand, affecting my ring and pinky finger, with a large nodule at the base of my pinky. Had to give up golf and haven't been able to ride for the last couple of months.

Been spending most of my time in the pool and considering giving up triathlon altogether.

I had carpal tunnel surgery several years ago and don't relish the thought of going through hand surgery again. Going back to my doc soon to discuss options.

Mark

don't give up. get the surgery. it's only one day for me and the hand feels pretty good already. it's well worth it to get this taken care of.

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''Sweeney - you can both crush your AG *and* cruise in dead last!! 😂 '' Murphy's Law

Another with the lovely Dupuytren's here. Both hands, mainly the little finger. Lumps at the first (lowest) knuckle and then raised cords and nodules down through the palm. Had the Xiapex injections in November'ish last year, one lot on each hand about 4 weeks apart. One hand seems to have worked really well, while the other is now more "flexible" but still has a pretty obvious cord and tender nodules in the finger and palm. Going back for a second go at the dodgy hand (Dr did warn that it takes on average 1.5 treatments so I guess I'm batting average on this one) and hoping that it'll work and give me a few years before I have to think about whether to inject again or get the knife version. Beauty of the injection is that I was back on the bike in 24hrs (indoor only - was 72hrs before I was outside), back in the pool in 4 days and running the morning after. Good luck!

Gah! You'll still be able to squeeze brake levers? Not that you need them for AmZof, just balls out cycling there.

;-p

PS, is it snowing there? I've got plans for hitting the course next weekend.

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To breathe, to feel, to know I'm alive.

i didnt run today. i'm still a little woosey. i went out for a 2 hour walk. i have a tri bike on the trainer that i should be able to ride and hope i can run tomorrow.

i was completely knocked out and intubated for about 3 hours yesterday. taking it easy today.

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''Sweeney - you can both crush your AG *and* cruise in dead last!! 😂 '' Murphy's Law

do you have any pictures pre-surgery?

Heal well!

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maybe she's born with it, maybe it's chlorine
If you're injured and need some sympathy, PM me and I'm very happy to write back.
disclaimer: PhD not MD

Thanks TC. It's feeling good already. I ran this morning and rode the trainer after lunch. I changed the bandage today and although two of the fingers don't look totally straight, the lumps and bumps in the palm that caused the pain are gone. It's looking pretty good.

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''Sweeney - you can both crush your AG *and* cruise in dead last!! 😂 '' Murphy's Law

I have Dupuytren's in both hands and Ledderhose in the feet (the equivalent of DD). Had my left hand treated with radiation therapy 2 years ago. RT is good for relatively early stages, extremely low dose and risk, and has an 80%+ success rate in halting disease progression in the radiated area. Most docs aren't familiar with it but the word is spreading. I'm in the US and went to Germany for treatment by the world expert (Heinrich Seegenschmiedt, radiation oncologist) and my insurance probably wouldn't have covered it (and I have a high deductible), so actually cheaper for me go there. Anyway, it's definitely worth looking into. I wanted treatment to prevent contractures and deformity, not just fix it after it developed. More info on the DART (Dupuytren's Advocates for Radiation Therapy) Facebook group - it's a great resource. Good luck with the healing process and for a quick recovery!

Got the stitches out today and took this pic before they took them out;



It feels great now that I'm home, and the fingers are really straight again

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''Sweeney - you can both crush your AG *and* cruise in dead last!! 😂 '' Murphy's Law

Had the surgery done at age 46 (quite young?) last year on my right hand. The main reason was because my partner kept referring to it as "the claw"... :o)

Had insurance so wasn't too costly. All good so far, but it will come back I'm told, and left hand is showing the first signs also.

Surgeon said to hold off surgery as long as you can if possible, as it comes back, and it's only operable two or three times. Also done under a general so can get expensive... I'll have to look into the radiation therapy stuff, although I doubt it's available anywhere near here (NZ)...

Good luck with it!

Because my father had it and let it progress without surgery, I became very aware of it. I had my first symptoms a few months ago and after doing some web research I rang around radiation oncologists to see who did radiation therapy for this condition. As luck would have it there is such a specialist in my local area and I am commencing the radiation therapy in less than a fortnight. Hopefully I have nipped it in the bud. I am 67 years old.

Reviving an old thread as I was just diagnosed with Dupuytren's Disease/Contracture this week. I'll give a brief timeline and would appreciate any insights others may have learned from having dealt with this.

• Oct. 1st (ish) found a bb sized bump in the palm of my hand below the space between my pinky and ring finger of my right hand. This bump roughly tripled in size over a 3 week period.
• Oct. 23- original diagnosis of ganglion cyst for the bump.
• Oct. 25- bruised feeling started in forearm from wrist to about 3 inches down the arm. (no known impact etc.)
• Nov 5- bruised feeling lengthening down arm (now 6 or 7 inches) and first found tiny bumps along the tender sections of the tendons.
• Nov 9- nodule starting in left hand below ring finger. Denting occurring in the area between nodule and base of finger.
• Nov 10- diagnosed with Dupuytren's.
• Nov 11- triangular denting now appearing above nodule in right hand and tendon pushing out like a cord on base of pinky.

I realize this is a triathlon forum and not a Dr's office. I will continue to follow the advice of my hand specialist for medical advice. Current advice is wait and see if contracture begins before considering any intervention. The rate of change is considered rapid but that doesn't mean that the prognosis is necessarily severe. Truth be told, I'm a little on edge about this as I can see/feel physical changes nearly by the day.

So my questions are:

Can any of you describe the timeline of progression you experienced with Dupuytren's?

How did it impact your ability to train?

Did you have any issues with tendons in your forearm? How did it progress?

Any other insights or tips are appreciated.

Thanks,
Scott

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I have deceptive speed.........I'm slower than I look!

Scott,

Nothing wrong with asking about the range of personal experiences while keeping in mind that your hand specialist is ... well ... a hand specialist.

I am 49. I first noticed nodules in my palms 20 years ago. They grew very very slowly over the decades.

At this point, I cannot quite fully straighten the ring finger of my right hand. So my function has not been impacted in any meaningful way. My relevant activities include swimming, cross country skiing, cycling, even rock climbing.

I have large obvious lumps adjacent to divots in the palms. They look worse than they actually are. They are tender if I really mash on them or if I hyper extend the fingers.

I have no symptoms above the wrist.

I have one stable nodule in my foot.

I have zero intention of doing anything about my condition. I expect that I will die with funny looking hands, that's all.

Your story is different in several regards including speed of progression and symptoms above the wrist.

Best wishes, Todd

(edit: fixed grammatical mistake)

Good luck with your hands. It's good that you are seeing a hand specialist. The doc should be able to take good care of you.

My hands have been very good since the surgery. The disease is progressing, but very slowly. I have a nodule in each palm that I would like to get removed but with covid it will have to wait a while. I'm 70 years old and also have arthritis in my hands so that contributes to my issues. The only time it's a problem is if I ride a road bike then my hands are stiff and achey the next day.

I still ride my tri bike with no problems.

We are all different and the disease affects us all differently, but you have to take care of it. If you ignore it, you can let it get so bad that they can't straighten things out.

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''Sweeney - you can both crush your AG *and* cruise in dead last!! 😂 '' Murphy's Law

Agree with Sweeney. I'm the medical director of the hand surgery fellowship training center in Cincinnati. I am an anesthesiologist and have worked with this great group for 20 years. Over that time, I see on average a case a week. Most don't involve forearm or feet. Many of us have it but have no significant functional deficits. Many will die with it without needing an operation. Worst cases have amputation performed so they can grab things out of their pockets and shake hands again with other folks. Hard to guess your progression, but it seems the speed is unheard of and would be a bad sign. My guess is your just noticing all the changes that have slowly crept up over time. The achiness usually goes away over time. No significant things you can do at this point to affect the progression. Surgery is a bitch. Many hand specialists won't do it and refer to just a few guys in town who do all of them. See how many fasciotomies your specialist does a year and see if they would recommend a second opinion. Too risky for permanent damage to not have "the guy" doing your surgery should you need it. Fingers crossed for you.

Brian

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"We don't inherit the Earth from our ancestors, we borrow it from our children." --Chief Seattle

Thanks to each of you for chiming in. I appreciate your insights. I've been reading up and it seems it is pretty individual how and when things progress.

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I have deceptive speed.........I'm slower than I look!

I have it pretty bad and will seek treatment soon. There is a new medication that is being used now. Here is there information website.

https://www.factsonhand.com/options

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BoulderCyclingCoach.com

Thanks for that info. I'll check it out.

I'm a new transplant to northeastern Colorado. If we get back to racing maybe I'll get a chance to meet you in person.

Scott

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I have deceptive speed.........I'm slower than I look!

Sound great, We finish out last CX season likely this weekend. Keep us update as you go through the process, I would like to find an experienced Doctor.

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BoulderCyclingCoach.com