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"What was the secret, they wanted to know; in a thousand different ways they wanted to know The Secret. And not one of them was prepared, truly prepared to believe... The Trial of Miles, Miles of Trials. How could they be expected to understand that?"
My doctor told me when I was younger that I would probably never be able to exercise for longer than 30 mins at a time. I haven't found this to be true at all. Its definitely possible with a little extra caution.
I have what's been classified as insidious onset of centrally induced diabetes insipidis (it's related to a dysfunction in my pituitary, rather than in the kidneys). Nobody can say how it developed, but with a lot of the reading I've done, I'm inclined to think it's from a concussion. When I was first diagnosed, they started with essentially 0.05mg of desmopressin that I took three times per day. Over the first year, we finally figured out that 0.1 mg works for me and I take it at breakfast, lunch and dinner. This works really well if I drink normally throughout the day, but it seems like if I drink a lot shortly after taking a dose (6-8 ounces in 5 minutes) it seems like it flushes the medicine out of me. If this happens, I'll generally take an extra dose, or half a dose and it doesn't seem to adversely affect me. Also, if I know I'll be having several beers in the evening, I'll take an extra dose. I'll also cheat if I'm taking a long car trip and take an extra dose so I don't have to stop as frequently.
As for managing races, here's how I generally do it. As a caveat, I've done 2 marathons, 2 ultras and a few half irons since being diagnosed. The day before, I'll generally take my medicine normally, but I'll try to drink a bit more throughout the day. I will make a conscious effort to evenly space my drinking through the day as it seems to be absorbed better and doesn't "flush out" the medicine I just took. The morning before the race, I'll generally double what I take. Also, I generally try to drink a little more than I normally do, but I'm very conscious of avoiding drinking a big dose at once. I don't really do this for half marathons as hydration isn't absolutely as critical, but I will for anything longer.
This is good practice even though you likely have more-than-average catching up with fluids after the swim. Triathletes in general should avoid over hydration just before the swim leg. (The extra fluid volume consumed indirectly puts more stress on the heart and lungs during the swim until the excess is urinated.)
You might try posting to it.
"Keep those feet moving!" Me