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(posting from his wife's account)
and thanks so much for the great info Ryan about CAF and the help that is out there! you rock!
have a great one team!
Thanks for the extra info, that helps put things in a little better perspective.
I am not sure I can be of any further help regarding other possible causes of your symptoms sometimes you have to wait and see how things either evolve or don't evolve while also preparing yourself for the fact that you may never get a "definite" diagnosis.
With respect to finding a place in the Chicago area that could measure your sweat rate, temp regulation etc. I would start by contacting the National Center on Physical Activity and Disability www.ncpad.org. The are housed at the University of Illinois at Chicago. They have an exercise phyisology department there as well that you could call.
Good luck with everything.
I will check out the testing centers- thanks so much!
I am also questioning the impact of endurance training (15-20h/week mainly at aerobic pace) on my MS. Most neurologists encourage physical activity, but I guess as some of you previously in this trend, my definition of physical activity is probably slightly different to what most people, including neurologists, think about. My neurologists in France are aware of my training but donâ€™t seem to think itâ€™s a bad idea.
I will be racing my first full IM distance in June in Cairns, and have qualified for 70.3 Worlds in September in France. I have created a Facebook page and a blog to raise awareness and give hope.
Feel free to support by visiting the pages
Facebook page: https://bit.ly/2JtBreG
2 objectives: Raise awareness I Give hope
My Multiple Sclerosis races Ironman (at least for now...)