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Re: Multiple Sclerosis and Ironman [Kelly Wissolik] [ In reply to ]
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Wow. What a great post! I was diagnosed with MS last September, and am currently using Betaseron. I am not yet up to IM distance, but am signed up for IM-MOO '09, wondering how I am supposed to train, what to be worried about, etc.... I've talked some to my neuologist, and a couple racers with MS, but the more knowledge, the better, in my opinon. The info on here is awesome. Thanks!
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Re: Multiple Sclerosis and Ironman [travisvb24] [ In reply to ]
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For what it's worth, USAT and ITU have a racing division that includes triathletes with MS. Racing in the division allows you to race against other athletes facing similar challenges. The division is recognized internationally and has a solid field of competitive triathletes at events like the NY City Triathlon, ITU age-group World Championships, Chicago triathlon, Malibu triathlon, and St. Anthony's Triathlon. There is even USAT national team support for the fastest athletes in the division. The Challenged Athletes Foundation provides grants for athletes with physical disabilities to help cover expenses for competition, training, or equipment. CAF is at http://www.challengedathletes.org The grants are under "access for athletes" in the "programs" section. More info on the USAT divisions and team can be found at http://triathlon.teamusa.org/content/index/2160 XTERRA also includes a division that recognizes athletes with MS. Feel free to contact me at ryan@ryanlevinson.com if you need specific info. Go get 'em!
Ryan Levinson
(posting from his wife's account)
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Re: Multiple Sclerosis and Ironman [travisvb24] [ In reply to ]
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Yea! That's awesome about IM WI next year. I'm sorry to hear about your diagnosis but the energy and encouragement from everyone with MS has really been awesome! I'm signed up for IM WI 2009 too- we are going to have a camp this summer with several athletes doing the race. Where do you live? We are in the Chicago area. feel free to email me anytime! good luck with training, racing and resting:)
-Kel
kelly@energyfitnesscoaching.com
and thanks so much for the great info Ryan about CAF and the help that is out there! you rock!
have a great one team!
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Re: Multiple Sclerosis and Ironman [Kelly Wissolik] [ In reply to ]
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Kelly,

Thanks for the extra info, that helps put things in a little better perspective.

I am not sure I can be of any further help regarding other possible causes of your symptoms sometimes you have to wait and see how things either evolve or don't evolve while also preparing yourself for the fact that you may never get a "definite" diagnosis.

With respect to finding a place in the Chicago area that could measure your sweat rate, temp regulation etc. I would start by contacting the National Center on Physical Activity and Disability www.ncpad.org. The are housed at the University of Illinois at Chicago. They have an exercise phyisology department there as well that you could call.

Good luck with everything.

Kurt
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Re: Multiple Sclerosis and Ironman [jacksonk] [ In reply to ]
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Great info Kurt. Thank you so much! We have decided to not try to compete this year in Kona and instead focus on getting back to 100% and channeling all our energy to great things ahead, working with other MS athletes and hoping for success in 09 to get back to Kona.
I will check out the testing centers- thanks so much!
-Kel
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Re: Multiple Sclerosis and Ironman [Kelly Wissolik] [ In reply to ]
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Although this is a fairly old thread, I have been reading it carefully as I got diagnosed with MS 3 years ago, and kept on racing and training pretty hard. For context, I am 30, have been on Aubagio for 2 years.

I am also questioning the impact of endurance training (15-20h/week mainly at aerobic pace) on my MS. Most neurologists encourage physical activity, but I guess as some of you previously in this trend, my definition of physical activity is probably slightly different to what most people, including neurologists, think about. My neurologists in France are aware of my training but don’t seem to think it’s a bad idea.

I will be racing my first full IM distance in June in Cairns, and have qualified for 70.3 Worlds in September in France. I have created a Facebook page and a blog to raise awareness and give hope.

Feel free to support by visiting the pages
blog: https://mymsracesironman.home.blog/
Facebook page: https://bit.ly/2JtBreG
2 objectives: Raise awareness I Give hope

https://mymsracesironman.home.blog/

My Multiple Sclerosis races Ironman (at least for now...)
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