Hey Heidi, read your post here as well as the Iliac Artery Endofibrosis - I got it thread. It appears that's locked down now. Can no longer post/reply. Thought I would seek out help on this thread. I have the condition based on everyone's comments. My local doctors in Texas are not being helpful with diagnosis. Saw my CT scan today and doctor informed he didn't know how to help out. Called Dr. Cherry's office realizing this is my only hope only to find out Dr. Cherry has retired. Aghast...our US expert doctor has retired. Surely he taught other doctors or other doctors have come to knowledge of this condition.
Any suggestions for a doctor familiar with IAE?
Sorry, I didn't see this post. Wow, I'm seriously bummed that Dr. Cherry retired. The surgeon who did my iliac artery bypasses (Christian DeVirgilio in Los Angeles) also retired and I was counting on Dr. Cherry if I needed a ten year touch-up. Dr. DeVirgilio referred me to David Rigberg at UCLA
for follow-up on mine. I can't vouch for Dr. Rigberg's surgical skill, though; I've only seen him once and that was just to review post-surgery function. He seems like a good guy and knows about IAE, which is more than most. He's also a well-respected vascular surgeon in the L.A. area and I trust Dr. DeVirgilio would only refer me to someone he trusted. I would probably go to Dr. Rigberg if I needed an additional surgery, given Dr. Cherry's retirement. As for Dr. Lee at Stanford, I've heard very mixed things. I'd recommend looking at the other thread Slowman linked for some of the comments from people who've had surgery with Dr. Lee. I know Dr. DeVirgilio did a re-do for someone who had surgery with Dr. Lee.
Let me know if there's anything I can do to help.