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Multiple Sclerosis and Ironman
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Hello Triathlon Friends
I just got diagnosed with Multiple Sclerosis. I'm still not sure it is what I am struggling with as I've seen 3 different neurologists and no one is in total agreement. I'm searching for as much information as possible and if anyone has an info/experience etc I would be very appreciative.

I recently posted a question on the USAT coaches group and I've been receiving a lot of good information. I hope to continue to learn as much as I can. Sorry for the lengthy post here but thanks in advance for your help!


I am reaching out on a personal level- as a coach and Ironman Athlete.

I have been racing Ironman since 2005. Before that I did a lot of biking, spinning, running, strength work, Pilates and things and have really been in good shape from 1996 through the now. However, during 04 I started having some weird health stuff and although 05 was a successful year of training and racing I struggled a bit with fatigue, weakness, hair loss, low bone mass and unexplainable itching. We attributed this all to over training, teaching classes, coaching and working a full time job.

In 2006 I focused on sleep, lessened my training load and still had similar issues.

In 2007 I had a big year with Lake Placid and IM Wisconsin along with a couple of 70.3s. I seemed to struggle with a lot of stomach issues, urinary tract infections and more weakness, hair loss, itching and fatigue. I did qualify for Hawaii at IM WI though and shuffled through Clearwater in November and then I took a long break once again.

In 2008 I continue to struggle with fatigue, hair loss, itching and the first Ĺ of the year I really struggled with stomach issues.
Over the years I have seen PCPs, an allergist, a rheumatologist, endocrinologists, ENTs, gastroenterologists and just lately, 3 neurologists.

I experienced my first DNF at IM CDA this June. I trained so hard for the race and was expecting to perform very well after pulling out of Eagleman the week of, seeing the GI doc and starting on a medication for colon ulcers and gastric emptying issues that was discovered. But instead I had horrible stomach pain all morning, struggled through the swim after getting kicked in the head right at the beginning and road in a fog. I thought I had a concussion? I felt so disoriented on the bike and threw up throughout the ride. I fell into the volunteers arms coming into T2 and rested on a cot for 45 min, tried to run but ended in an ambulance at mile 7.

I took it easy once again for the next several weeks but did 3 Ĺ Iron distance races July 20th, July 27th and Aug 2nd Ėbut the morning after Newfoundland 70.3, July 28th, my health really deteriorated. I became really dizzy, weak and nauseous. This continued for weeks with 3 to 5 days each week filled with Vertigo. I saw a neurologist and he said it was Migraines and sent me out with an Rx for Topamax. I insisted on an MRI after a recent trip to the ER and a CT scan that seemed okay. The MRI showed a lesion consistent with MS. I then saw another neurologist, had a lumbar puncture and it detected high levels of proteins consistent with MS. I also had 20tubes of blood drawn. Next was another trip to the ER after a stroke like attack, then the MS specialist who ordered more MRIs and a few more lesions were discovered in the cervical spine. No lesions seemed to be active though?

So, I have been diagnosed with MS as of September 16th.
I do have a lot of weird symptoms but two of the three neurologist still do not feel it fits MS. I started a medication for MS, Copaxone, and I continue to feel a bit better every day but still have some dizziness and weird vision issues along with tons of fatigue.

Another doctor just added Provigil and I did my first workout Friday after being off for nearly 15 days. I did an easy bike, super short swim and short run. I felt weak but to be expected after the downtime but I was so happy to be working out. I tried to ride the IM WI course yesterday but only made 88 miles as I was just too weak.
I used to train 18 to 25 hours a week. But since June that really has lessened and in August I only got a couple short workouts in consisting of only 1 swim, some bikes, and somehow I rallied and got one great 144mile ride on the IM WI course in just over 7hrs, a couple of runs of which only 1 up to 60min. Septemberís total training is even less with a couple trainer rides, 1 IM WI ride on the trainer, several failed attempts at Hawaii on the CompuTrainer and a couple short runs and then this past Friday and Saturdays workouts.

So here is the deal, I am supposed to do Ironman Hawaii Oct 11th.
Sometimes I think I have the base to pull me through and sometimes I just donít think Iíll make it at all.

I am desperate for help. I am looking for advice and any knowledge that anyone may have on Multiple Sclerosis and Ironman athletes. Iím reading and researching as much as I can but your help is so appreciated. And if anyone has any other thoughts on what else perhaps Iím suffering from, please share, I know there are several physicians on this coaches group.

Iím working with a new team of doctors and will be looking into mercury toxicity, a chronic fatigue panel and more yet as Iím determined to fight this- whether itís MS or another autoimmune issue. I know I can get better but I know itís going to take a lot of work. Your help is greatly appreciated. Thank you in advance for any information you might be able to provide.

Wishing you all the best in your training, racing and coaching and thanks again!
-Kel
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Re: Multiple Sclerosis and Ironman [Kelly Wissolik] [ In reply to ]
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Hey, thanks for sharing your experience. I've read a lot about how MS is a disease with a high incidence of occurence in Northern Latittude where sunlight and Vitamin D exposure is reduced, especially in the winter...MS rates in the Canadian Praries and Scotland are much higher per 1000 than in tropical countries. Regardless, take care of yourself. Hawaii is just another race....it is a cool race, but not worth risking any damange.

With any of these autoimmune diseases, I've read that a stressful event can cause some kind of trangression of the T cells across the blood brain barrier, resulting in ones own immune system attacking its own healthy central nervous system....not quite sure if putting the stress of IM hawaii is worth risking another potential MS attack and further potential deterioration of brain/CNS function.

Seriously though, just talk with your Neurologist at this point! Please keep us posted!
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Re: Multiple Sclerosis and Ironman [Kelly Wissolik] [ In reply to ]
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I'm sure you have read everything, but this is a good read from wikipedia:

http://en.wikipedia.org/...f_multiple_sclerosis
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Re: Multiple Sclerosis and Ironman [Kelly Wissolik] [ In reply to ]
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I forwarded your post to a few good friends who both have MS but compete in triathlon at a high level. In fact, I think one is sponsored by Copaxone. One is more focused on XTERRA, the other XTERRA and ITU AWAD. Hopefully they can help. You might also want to contact the challenged athletes foundation for other references. There are a number of amazing triathletes (and athletes in other sports) who have MS. For example, do you know who Wingnut is? The professional surfer from the movie Endless Summer 2? He has MS too. You're not alone and you are not done with triathlon, not by a long shot!
Best,
Ryan Levinson
(posting from my wife's account because I swore off Slowtwitch a while back. Your post is important)
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Re: Multiple Sclerosis and Ironman [trisum_luv] [ In reply to ]
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Thank you so much for the good info so far and for passing it along to others with MS. I am thankful for your time and help. thanks for the support and encouragement. I wish you both the best too!
-Kel
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Re: Multiple Sclerosis and Ironman [Kelly Wissolik] [ In reply to ]
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You just got a really good reply from the coaches group by Dr. Phil. You should go read it.


3 Months of Paradigm Shifting Swim Instruction for Cheap // Your Professional & Private ‚ÄúCritique my Fit‚ÄĚ

The Swim Help Compilation Thread

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Re: Multiple Sclerosis and Ironman [Kelly Wissolik] [ In reply to ]
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Kel,
My name is Robbie and I was diagnosed with MS in 2001. I've been racing ITU, 1/2 IM and Xterra ever since. The questions you posted are very important and probably are best discussed on a phone call. My email is robbie@tri4ms.org , please ping me and I will send you my cell # so we can arrange a call.
The good news is there are a number of us with MS that race and continue to race, we use many of the current drugs and they work very well. I live in San Francisco and work with the National MS Society, CAF and UCSF on many levels as a advocate and a test subject. My personal Neurologist is the head of the MS center at UCSF and one of the original team that worked on the first drug for MS so I have a lot of information about the disease. As an MS patient I also have the personal experience of the disease outside of the science. Bottom line is that MS is a challenge but it can be well managed and does not have to stop you from racing.

Lets Talk

Robbie
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Re: Multiple Sclerosis and Ironman [Kelly Wissolik] [ In reply to ]
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Hey Kelly,

I'm friends with Robbie and Ryan and I've had MS for 6 years and been on Copaxone for 5. I race many times a year and will be heading to Xterra this weekend at Lake Tahoe with at least 2 other MS athletes. I believe my long time coach, Connie, has already contacted you on the coaching forum and I would instruct you to join up with her if she offers. She has been awesome for me and started coaching me when I couldn't even swim 1 lap or run 1/10 of a mile.
I also extend the offer to talk to you whenever, just PM me on here with your number and I'll call. Like Robbie, I work with the Ntl MS Society, CAF, and also the USAT Physically Challenged Team.

This is not a death sentence, but you will have to make a lot of adjustments and be careful with your training load. You can do great things and enjoy triathlon with MS. I look forward to hearing about your progress.
david K
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Re: Multiple Sclerosis and Ironman [PDK] [ In reply to ]
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David and Robbie
thanks so much for reaching out to me, sharing your words of wisdom and experience. I am so thankful! yes- i've been speaking to tons of coaches and other athletes. it truly is so helpful!
i'm so glad to hear how well you are doing and that I'll still be able to enjoy triathlon!
if i continue to feel better- should i try Kona then Oct 11th???
yes- please do send any info you may have and I do want to get involved with MS society and more- if you have suggestions/connections let me know as well. I even thought of starting a foundation or something for athletes mastering MS:)
let's talk more!
thanks so much!!!!!!!!
-Kel
kelly@energyfitnesscoaching.com
419 508 9119
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Re: Multiple Sclerosis and Ironman [Kelly Wissolik] [ In reply to ]
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Kelly,
I encourage you to ask that question to Connie. We, as athletes, are not the most objective folks when it comes to our bodies vs. our desire to perform/compete. In my experience, Connie, and the coaching group she is afffiliated with, is doing more than any other endurance coaches in regards to athlete tracking. That's a mouthful, but I'm also in the "business" and know how and what people prescribe to their athletes. I may be being unfair to other coaches, but Connie can smell overtraining well before I feel it. She has also worked with several other athletes with MS, not just me and has become quite the specialist. The More is More concept does not work for us, unfortunately.

Also, contact your local chapter of the MS Society and request ALL of their free resources and get on their mailing list. Keep in touch with Robbie, Connie and I and we'll see you through this!!
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Re: Multiple Sclerosis and Ironman [PDK] [ In reply to ]
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Ahh thanks so much- Connie has been awesome- she does recommend not doing it and resting but is supporting me saying that I likely have the base to finish Ironman Hawaii and I would just need to listen to my body. She has offered a ton of good suggestions and advice and I'll continue to be in touch with her! thanks so much again! have an awesome day!
-kel
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Re: Multiple Sclerosis and Ironman [Kelly Wissolik] [ In reply to ]
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I am going through similar health issues (i.e.: something big, lots of symptoms, hard to diagnose, etc.) so your post really speaks to me. I too am being tested for MS now.

However, I have personally lived with someone who eventually died from MS. She deteriorated pretty quickly. You might not, you may be able to sustain enough muscle mass to keep you moving longer than most.

Go do IMH and enjoy it. Even if it takes 16:59:59 to finish it. You may be in a wheelchair in 5 years. I am hoping that you are not, but you have no idea what could happen tomorrow. You may never do another Ironman again.

Good luck. Hang tough. Keep us posted.

AP

------------------------
"How bad could it be?" - SimpleS
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Re: Multiple Sclerosis and Ironman [AndyPants] [ In reply to ]
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Wow Andy- I'm so sorry to hear! Gosh, I am praying for you and wishing you the best! I am sorry to hear about your friend, that is awful. I will be thinking of you and please keep in touch. You can email anytime- kelly@energyfitnessocoaching.com
This is a wake up call for sure and it's scary- we do never know what tomorrow will bring the scarier thing is what if we could have done something to prevent the bad outcomes but what if we never take the chances and miss out as well. Life is not easy that is for sure and there is so much uncertainty out there which is why there is a bigger picture of emotions and challenges that we are all facing. I hope things improve for you! I am so thankful for all the people that care and are concerned. It's been amazing. I continue to pray and I hope God will lead me in the right direction. All the best to you!
-Kel
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Re: Multiple Sclerosis and Ironman [Kelly Wissolik] [ In reply to ]
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Hi Kelly,

Thanks for sharing your story, I'm sorry to hear about your recent troubles. You sound like a person of great faith and determination and I'm sure you'll fight hard make the best of whatever is to come. I hope you receive a great response for your request for information, I'm sure there are some slowtwitchers out there that will come forward with info. I'm not a doctor or in a position to help you there, but I have a conection to MS and Ironman as well.

My sister, Barb and I enjoyed triathlon together until she was diagnosed with MS in the early '90's. When I was finally able to make it into an Ironman in 2007 I dedicated my efforts to her and decided to raise funds for MS research. I've now completed 2 IM's and have raised over $20,000 for MS research here in Canada. My goal is 5 Ironmans, 5 years and $50,000.
MS is common here in Canada, possibly due to a lack of sunlight and vitamin D. There is lot's of research going on all over the world and they are making breakthroughs. My dream is for Barb to be able one day to return to the sport we both loved so much and hit the starting line together.

Hang in there, I know you will and please keep us all posted on how you are doing.

Chris MacMillan
Toronto
www.kentuckyboundironman.blogspot.com
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Re: Multiple Sclerosis and Ironman [Kelly Wissolik] [ In reply to ]
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Kelly,

I sent you an email... I dunno if it worked, I removed the o prior to coaching.com above.

I was dx in May 2008.

"life is not about surviving the storm, but learning to dance in the rain..."

I sent a link to Rod's Hairy Toads, which you can find with a google search. We did an MS ride as a reunion of cycling buddies and to encourage me never to give up. You really find out who your freinds are, when life throws you a curve.

Hang in there, and PM me if you'd like.


******************************

"Everyone is entitled to my opinion..."
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Re: Multiple Sclerosis and Ironman [Kelly Wissolik] [ In reply to ]
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My daughter got diagnosed with MS just over a year ago when she was only 15. She has been on medication (beteseron) for a year and hasn't suffered any further attacks. She just had her most recent MRI on Sept. 22 and things are going very well for her. She finds that she gets fatigued more easily than a few years ago but is quite an active and "normal" (at least as normal as she could expect with a nut for a dad!) teen. If your case is similar to hers and not of the progressive variety that really seems to hit people hard then training and racing would probably be recommended by your neurologist as long as you don't over train yourself into immune problems.

Best of luck and keep a positive outlook. I am constantly amazed with my daughter and how well she handles being diagnosed with this disease.
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Re: Multiple Sclerosis and Ironman [Allan] [ In reply to ]
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Allan, thanks for the good news about your daughter!
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Re: Multiple Sclerosis and Ironman [devashish_paul] [ In reply to ]
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Hey Gang
you all are so awesome!!
thank you ever so much for all the great information, stories and encouragement!
Rodney- thanks for the cool link- keep up the great work and energy- you are awesome. let's stay in touch- i would love to put on an event and support the research of MS too!!
Allan, I am so sorry to hear about your daughter but I'm so glad she is doing well. It sounds like she has a great dad!!

thanks again everyone! all the best and talk to you soon!
-Kel
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Re: Multiple Sclerosis and Ironman [Kelly Wissolik] [ In reply to ]
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Kelly:

Contact the Heuga Center for Multiple Sclerosis in Vail, Colorado, and speak with someone there or sign up for one of their programs, which they run throughout the country. www.heuga.org. The programs address all sorts of needs, and the Center has some excellent therapists, doctors and nurses on staff.

Best of luck,

Brad Kennedy

___________________________
De que depende?
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Re: Multiple Sclerosis and Ironman [Kelly Wissolik] [ In reply to ]
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Kel --

Here for you night and day...
You have "unfinished business" and I, among others, will be there with you to get it done...When you know you are ready... Kona, 2009, getting it done and more!
Love You!

Cherri
Last edited by: perfcctionist: Sep 30, 08 18:49
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Re: Multiple Sclerosis and Ironman [Kelly Wissolik] [ In reply to ]
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Kelly,

It sounds you have been through a lot these past couple of years, for most people with autoimmune related disorders such as MS or Lupus the diagnosis process is often one the most challenging parts of the disease. Also not knowing how you might feel from day to day or week to week.

I understand that triathlon is an important part of your life and identity. However, I am concerned about you doing Ironmanís. It is clear that Ironman distance triathlons provide no long-term physical health benefits that cannot be gained with much more reasonable efforts. However, they do cause significant short-term damage and stress to major organ systems. It is simply not a risk worth taking especially with any systemic autoimmune disorder.

A few things in your post concerned me about your training and racing. You stated that in addition to Ironman races you did three Ĺ iron distances three weeks in a row and train 18-25 hours per week all while teaching, coaching and working full time. That does not seem like an appropriate balance whether you have MS or not. I respect your discipline and dedication but that type of schedule is simply not sustainable.

I would focus on a more balanced training program similar to what you had been doing previously running, biking, stretching and moderate intensity strength training. In my professional opinion I would stick with sprint and olympic distance events and avoid racing in extreme heat if possible. Temperature regulation , sweat rate and normal cardiac responses to exercise can all be affected by MS. You may even want to have yours measure in a lab for your own knowledge.

I would refer you to several book chapters I have co-authored with one of my colleagues.

Jackson KJ, Mulcare JA. Multiple Sclerosis In: ACSMís Exercise Management for Persons with Chronic Diseases and Disabilities (2nd Ed) Human Kinetics 2003.

Mulcare JA, Jackson KJ. Multiple Sclerosis and Exercise In: Clinical Exercise Physiology: Application and Principles, Lippincott Williams & Wilkins 2003.

I would also look up Andrea White PhD, FACSM at the University of Utah and look up her research on PubMed her e-mail is adrea.white@health.utah.edu. She is currently one of the foremost researchers on exercise and MS. I would also look for research by Janet Ponchitera-Mulcare and Jack Petajan PhD.

Sincerely,
Kurt Jackson PT, PhD, GCS
Neurology Coordinator
University of Dayton
Doctor of Physical Therapy Program
kurt.jackson@udayton.edu
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Re: Multiple Sclerosis and Ironman [Kelly Wissolik] [ In reply to ]
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Kelly,
I have 2 very good friends diagnosed with MS that were able to return to competition, including racing at IM level and Hawaii, after they remained symptom free on treatment. They took their time returning to distance racing, working their way back up through the shorter distances to make sure that their bodies responded well, without becoming symptomatic again. All of this was done after a period of rest and treatment.
Based on what you posted concerning training and racing, it sounds like your body is giving you the signal to give it some rest. Please be careful and consult your neurologist to determine whether or not it is safe for you to consider competing in Hawaii, it would not be worth it if you could end up doing further damage to yourself.
I wish you the best of luck and health,
Jen

__________________________________________________
Twitter: @jayasports
Web: http://www.jayasports.com

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Re: Multiple Sclerosis and Ironman [jacksonk] [ In reply to ]
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Hello Kurt
thank you so much for all this information, care and concern. I didn't include all the details of my life, progression, training and racing as I was trying to be as short as possible- so sorry if it was miss understood. I believe your message is good and I will check out the further information you have provided- so thank you- but I did want to clarify a bit:)
Kelly,

It sounds you have been through a lot these past couple of years, for most people with autoimmune related disorders such as MS or Lupus the diagnosis process is often one the most challenging parts of the disease. Also not knowing how you might feel from day to day or week to week.
Thanks so much- I have spoken to so many triathletes with MS over the last 3 days and I'm learning so much from them. I'm glad I pushed hard as it didn't seem doctors were listening to me this summer and until I demanded the MRI and the Lumbar Puncture- it wasn't going to happen any time soon, so for that, I'm thankful to find out sooner than later.

I understand that triathlon is an important part of your life and identity. However, I am concerned about you doing Ironmanís. It is clear that Ironman distance triathlons provide no long-term physical health benefits that cannot be gained with much more reasonable efforts. However, they do cause significant short-term damage and stress to major organ systems. It is simply not a risk worth taking especially with any systemic autoimmune disorder.
Interesting to hear about the short-term damage and stress - I would assume this would be a very stressful task on the body but after hearing the Okay to do it from the doctors and hearing from the many athletes out there training and racing with MS, I still was considering on going and just seeing if I continue to feel better and it I feel up to the race since we have the condo, flights and it is the World Championships and I may never get the chance to back. I am thinking hard about this and most likely will not race but I'm thankful for all that I am learning.

A few things in your post concerned me about your training and racing. You stated that in addition to Ironman races you did three Ĺ iron distances three weeks in a row and train 18-25 hours per week all while teaching, coaching and working full time. That does not seem like an appropriate balance whether you have MS or not. I respect your discipline and dedication but that type of schedule is simply not sustainable.
This is separated and not an accurate representation of my life right now. In 2005 I was working full time, teaching spin and Pilates, coaching a bit and training for my first Ironman season. When I felt fatigue, we backed off, moved home to Ohio and greatly reduced my training. In 2007 I stopped my full time job and only coach now. I gradually built my training up to 18 to 25 hrs a week in 07 and 08 until I could not maintain that this summer. Again- I listened to my body and reduced my training load. I attended 3 1/2 Ironmans is a better statemet. I went with my athletes two support them and I did not race the 2nd and 3rd one hard. I did not really workout in between these races either. So, although there still is a lot more detail to provide, I'll spare it and hope this helps you see that I am listening to my body and not an insane person trying to sustain a crazy pace:)

I would focus on a more balanced training program similar to what you had been doing previously running, biking, stretching and moderate intensity strength training. In my professional opinion I would stick with sprint and olympic distance events and avoid racing in extreme heat if possible. Temperature regulation , sweat rate and normal cardiac responses to exercise can all be affected by MS. You may even want to have yours measure in a lab for your own knowledge.
This is helpful. I do i have this measured? I'm in the Chicago area if you have any recommendations. And also, what do you think about the fact that numerous doctors are suggesting that I do not have MS but perhaps toxicity or something else?


I would refer you to several book chapters I have co-authored with one of my colleagues.



thanks so much again for all the info. Hope to stay in touch.
-Kelly

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Re: Multiple Sclerosis and Ironman [iggythecat] [ In reply to ]
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thanks so much Jen- great to hear and good advice- that is where I am leaning for sure!
please stay well and stay in touch!
-Kel
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Re: Multiple Sclerosis and Ironman [chris_mac] [ In reply to ]
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Chris - You rock! I'm so sorry to hear about your sister. That is so special what you are doing. Please stay in touch- I hope to get involved with things like this for sure!
-kel
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Re: Multiple Sclerosis and Ironman [Kelly Wissolik] [ In reply to ]
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Wow. What a great post! I was diagnosed with MS last September, and am currently using Betaseron. I am not yet up to IM distance, but am signed up for IM-MOO '09, wondering how I am supposed to train, what to be worried about, etc.... I've talked some to my neuologist, and a couple racers with MS, but the more knowledge, the better, in my opinon. The info on here is awesome. Thanks!
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Re: Multiple Sclerosis and Ironman [travisvb24] [ In reply to ]
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For what it's worth, USAT and ITU have a racing division that includes triathletes with MS. Racing in the division allows you to race against other athletes facing similar challenges. The division is recognized internationally and has a solid field of competitive triathletes at events like the NY City Triathlon, ITU age-group World Championships, Chicago triathlon, Malibu triathlon, and St. Anthony's Triathlon. There is even USAT national team support for the fastest athletes in the division. The Challenged Athletes Foundation provides grants for athletes with physical disabilities to help cover expenses for competition, training, or equipment. CAF is at http://www.challengedathletes.org The grants are under "access for athletes" in the "programs" section. More info on the USAT divisions and team can be found at http://triathlon.teamusa.org/content/index/2160 XTERRA also includes a division that recognizes athletes with MS. Feel free to contact me at ryan@ryanlevinson.com if you need specific info. Go get 'em!
Ryan Levinson
(posting from his wife's account)
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Re: Multiple Sclerosis and Ironman [travisvb24] [ In reply to ]
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Yea! That's awesome about IM WI next year. I'm sorry to hear about your diagnosis but the energy and encouragement from everyone with MS has really been awesome! I'm signed up for IM WI 2009 too- we are going to have a camp this summer with several athletes doing the race. Where do you live? We are in the Chicago area. feel free to email me anytime! good luck with training, racing and resting:)
-Kel
kelly@energyfitnesscoaching.com
and thanks so much for the great info Ryan about CAF and the help that is out there! you rock!
have a great one team!
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Re: Multiple Sclerosis and Ironman [Kelly Wissolik] [ In reply to ]
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Kelly,

Thanks for the extra info, that helps put things in a little better perspective.

I am not sure I can be of any further help regarding other possible causes of your symptoms sometimes you have to wait and see how things either evolve or don't evolve while also preparing yourself for the fact that you may never get a "definite" diagnosis.

With respect to finding a place in the Chicago area that could measure your sweat rate, temp regulation etc. I would start by contacting the National Center on Physical Activity and Disability www.ncpad.org. The are housed at the University of Illinois at Chicago. They have an exercise phyisology department there as well that you could call.

Good luck with everything.

Kurt
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Re: Multiple Sclerosis and Ironman [jacksonk] [ In reply to ]
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Great info Kurt. Thank you so much! We have decided to not try to compete this year in Kona and instead focus on getting back to 100% and channeling all our energy to great things ahead, working with other MS athletes and hoping for success in 09 to get back to Kona.
I will check out the testing centers- thanks so much!
-Kel
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Re: Multiple Sclerosis and Ironman [Kelly Wissolik] [ In reply to ]
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Although this is a fairly old thread, I have been reading it carefully as I got diagnosed with MS 3 years ago, and kept on racing and training pretty hard. For context, I am 30, have been on Aubagio for 2 years.

I am also questioning the impact of endurance training (15-20h/week mainly at aerobic pace) on my MS. Most neurologists encourage physical activity, but I guess as some of you previously in this trend, my definition of physical activity is probably slightly different to what most people, including neurologists, think about. My neurologists in France are aware of my training but don’t seem to think it’s a bad idea.

I will be racing my first full IM distance in June in Cairns, and have qualified for 70.3 Worlds in September in France. I have created a Facebook page and a blog to raise awareness and give hope.

Feel free to support by visiting the pages
blog: https://mymsracesironman.home.blog/
Facebook page: https://bit.ly/2JtBreG
2 objectives: Raise awareness I Give hope

https://mymsracesironman.home.blog/

My Multiple Sclerosis races Ironman (at least for now...)
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