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Re: Illiac Artery Endofibrosis - I've got it. [kenpet]
Hi Kenpet - I finally have a diagnosis (just). I have 'Common Iliac Artery Endofibrosis'

I'm not sure If i'm a normal human :-) When we did the ABI it returned a 'normal' reading. This was after a solid ride on the stationary trainer and symptoms were alive and kicking. I had one cuff on the right arm and then two on each ankle. Doppler Ultrasound showed nothing on the external Iliac artery. After this test, I didn't have vascular problem, and that was certain. I just collapsed on the bed....thinking its all in my head, im just going to give up sport.

The Doc popped back in to the room and asked for the Common Iliac to be Ultrasound, which seem to be quite a distance from the external iliac scan location. After not many words said by all, I had no idea what was going on. I just felt embarrassed to have wasted their time with with months of searching. The ABI had turned up normal and I knew the ABI was the most definitive test to identify Vascular problems. I felt stupid.

A post- test chat with the Dr and he said the Doppler Ultrasound actually picked up a Peak Systolic Velocity (PSV) in Common iliac of 450+. Apparently a rather high reading (compared to normal) and an indication of arterial blocking. We found the problem but I wasn't convinced, and either was the Dr, as the ABI was 'normal'.

After 24 hours of everyone thinking (Sports Doc, Vascular Doc and Me).....It was confirmed as Endofibrosis of Common Iliac. Both the 'dot' picked up in the angiogram, The PSV of the artery and the symptoms were enough to confirm / convince.

Where to from here...surgery to fix. But lots of questions to ask before making a decision:-)

Have you decided when and where you will have surgery e.g In Melbourne ?
Last edited by: Flick30: Sep 13, 15 21:06

Edit Log:

  • Post edited by Flick30 (Big Pines) on Sep 13, 15 18:58
  • Post edited by Flick30 (Big Pines) on Sep 13, 15 18:59
  • Post edited by Flick30 (Big Pines) on Sep 13, 15 19:03
  • Post edited by Flick30 (Big Pines) on Sep 13, 15 21:06