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June 12th > I met with Dr Cherry and an intern. We went over my records and discussed the prior two surgeries that had made the condition worse. I told him I believed I had it in my right leg as well. He agreed to have them take a look at the right leg when they did the angiogram. After that appointment they had me go downstairs and get registered in to the hospital. About an hour after that I had the angiogram performed on both the right and left leg. Dr Cherry came in to see me right after the angiogram and confirmed what I had suspected I did have it in the right leg as well. It was decided then that he would perform do the grafts on both sides during surgery. I went back to my hotel that afternoon. That evening I went back to the hospital and spent the night.
June 13th > I went in to surgery at 7:00 AM , I woke up from surgery at around 7:30 PM, surgery lasted 8 hrs . Dr Cherry did a midline incision and another incision on the right side from the iliac to the femoral artery because the endofibrosis was there as well.
June18th > I flew home to Seattle and don't remember much of the trip home. I could not walk more than a couple steps at that point so we used a wheel chair for the trip home.
Once home I was in bed for a week flat on my back . I was able to slowly walk about a mile within a couple weeks. 6 weeks after surgery I could get around pretty easily but was still very sore. 8 weeks I started some PT and tried some very easy jogging. Late Oct I tried some cycling and have cycled off and on up until now.
Everyone's experience seems to be a little different. In my case I had this for close to 6 years before I finally figured out what the problem was and then had two surgeries that made the condition worse . My recovery and how I felt after each one of the surgeries I had was different.
Hope this helps.
I've addressed time back to activity above, when I remembered better. I think I was on the trainer at 6 weeks, cycling outside around 8 weeks, did a hilly century 6 months later. My doctor specifically wouldn't let me swim for 6 weeks. There was a reason for that but I don't remember what it was -- something about stress on the incision and grafts in the freestyle swimming position. My standard caution: don't push yourself to go back to activity too quickly; follow Dr. Cherry's orders. You don't want to mess this up.
I am facing a patch angioplasty for 50% stenosis of the right External iliac artery and a complete bypass graft for 100% occlusion of the left external iliac artery due to severe endofibrosis. The section of artery on the left I am told is quite large/long, but no idea what that actually equates to. I am located in Mpls, MN and would love it if someone could recommend a Dr. in the Twin Cities who has experience specifically with athletes. I have consulted with two great surgeons so far, one at Abbott NW and the other at HCMC. But I believe both of these surgeons are accustomed to your more typical vascular patients, if you know what I mean. Both however have performed over 100 patch angioplasty and complete bypass graft surgeries so I I do feel comfortable in their capabilities.
One doc suggested harvesting a piece of vein from the groin/thigh region to complete the patch angio on the right. This would require two incisions on the right. The other doc suggested the use of bovine pericardium, so I would have only the one incision on that side. Anyone out there have experiences, pros/cons, thoughts on the two materials or about avoiding another incision? I think someone commented on this at some point....
On the left both docs have concluded a bypass graft is necessary using artificial ptfe or dacron. The difference is that one suggested leaving the section of occluded artery in place and just bypassing around while the other would plan to remove that long clogged portion of the iliac. Anyone out there had 100% occlusion and had the blockage left in place while bypassing around? That seems to be less common and I found it kind of surprising.
I just turned 30 a month ago and am not too thrilled about being faced with this, especially after watching YouTube videos of the procedure ;) I love biking. A lot. For the previous 6 summers I was riding an average of 300mi. a week as well as racing a handful of various distance triathlons each season. I also race road, gravel, cyclocross, and love going for the 150 and 200mi. events. I also XC ski which I was finding extremely difficult last winter - now I know why. The condition has been progressing for the last couple years but I had a severe drop-off this spring which led to all the frustrating doc appts until I discovered the condition through my own research. testing ensued and here I am. I should also note I have a partially torn labrum in the left hip and scar tissue, bone spurring and signs of damage in the right.
Anyone out there who regrets having their procedure(s)? Anyone having negative experiences 2,3,5 10 years down the road?
My apologies if I am repeating any of the earlier conversations here, but would love to hear from someone about my age who was able to return to 100% form and race and 100% intensity. My legs have been limiting me for the last 3-4 years, not my lungs and I'm ready for that to change.
Yes i am in Brisbane and I have also had an appointment with Dr Bell who I know has had good experience with EIAE.
to determine if you have EIAE you will need to have your ABI done before, during and after cycling.
This is how mine began.
ABI test before ride. ABI's OK.
15 minute warm up medium intensity. ABI's undertaken during pedal stroke. ABI's uneven.
High intensity. I think i rode for around another 15 minutes where i put myself in the hurt box. Heart rate maintained at around 160-170bpm Intense pain in both quads and calves.
Off wind trainer and straight on bed. ABI's undertaken every 2 minuets for 10 minutes. ( i was helped onto the bed quickly with both shoes still on )
At 0 minutes ABI's around 0.35 for both legs ( still in intense pain)
ABI's recovered every 2 minutes.
At 10 minutes ABI's around 0.9 so nearly normal.
Conclusive results backed by surgeon in Brisbane and then Dr Bell. EIAE both legs.
My initial ultrasound was clear as was my CT scans.
No i was first seen by a sports specialist Dr Richard Brown here in Brisbane who suspected that the cause of my issues were EIAE. I was sent for CT scan + normal ultrasound.
After negative / normal results he then sent me Queensland Xray diagnostic centre to specifically test for EIAE.
I had to take my bike and wind trainer because they only had running machines.
After the tests they provided me with copies of the report and all the ultrasound images that were taken during the tests.
I sent one copy to a Vascular Surgeon here in Brisbane and after his consultation which was " As you not a professional athlete I would recommend you stop cycling / sports because you have EAIE " or words to that affect. I then, a couple of weeks later sent all information to Dr Roger Bell in Melbourne. I didn't need any further testing as the results were conclusive.
If you don't mind me asking how old are you..... and are you a competitive sportsperson.